I only just noticed your reply, sorry about that. Genetic tests should be back in the next month so may be in touch (depending on what they find). Hope hope hope that they find something this time. It's been a long process for me.
Did they find a mutation for your daughter?
Diagnosed with DRD at age 20 with a Sinemet trial. Symptoms first recognised at age 10. Metabolic testing in 2005 (age 26) confirmed DRD. I am a medical scientist, and recently completed my Masters of Health Sciences (Genetic Counselling).